The Cardiac Center at Children’s Hospital of Philadelphia Recognizes Congenital Heart Disease (CHD) Awareness Week
Philadelphia, Pa. (Vocus/PRWEB) February 08, 2011
More than one million children and adults in the U.S. are living today with congenital heart defects and are an incredible example of the power of the advances in surgical and medical care and research efforts. As a family member or friend of a child or adult with a congenital heart defect (CHD), you have an incredible story to share.
The Cardiac Center at The Children’s Hospital of Philadelphia kicks off Congenital Heart Disease Awareness Week and invites families and individuals whose lives have been touched by congenital heart disease to advocate, fundraise and share your personal story to raise awareness of congenital heart disease and support research efforts at The Children’s Hospital of Philadelphia. A specialized toolkit has been developed to help families and individuals become CHD Champions.
This advocacy toolkit includes tips on how to raise awareness about CHD by sharing your story or fundraiser with the media, reaching out to legislators or writing an editorial for your local newspaper. The toolkit was developed to partner with our families and the larger community to make a difference in raising awareness about congenital heart disease.
“Awareness and funding of CHD is vital to the development of new and better treatments and to continue to search for the causes of congenital heart disease,” said Robert Shaddy, M.D., chief of the division of Cardiology at The Children’s Hospital of Philadelphia “Congenital Heart Disease Awareness Week brings pediatric issues to the forefront, and I invite everyone to partner with the Cardiac Center to raise awareness that children’s heart issues are extremely important.”
The Cardiac Center is one of the largest centers in the world dedicated to caring for patients of all ages with CHD with 24,000 outpatient visits, 1,500 inpatient admissions, more than 1,000 cardiac catheterizations and more than 900 surgical procedures annually. The Cardiac Center offers the most cutting-edge surgical and interventional treatments available for children with heart defects, many of which have been pioneered by CHOP physician-scientists.
Babies who are prenatally diagnosed with a congenital heart defect may be delivered in the Garbose Family Special Delivery Unit, the world’s first delivery unit exclusively for babies with congenital conditions.
The Cardiac Center staff is a team composed of pediatric and adult cardiologists, cardiothoracic surgeons, pediatric cardiac anesthesiologists, cardiac nurses, nurse practitioners, physician assistants, social workers, respiratory therapists, child life specialists, operating room technicians and many others who are dedicated exclusively to providing a continuum of care for patients of all ages with CHD, fetus through adult.
Join Children’s Hospital of Philadelphia in recognizing Congenital Heart Disease Awareness Week, February 7-14, 2011.
Become a CHD Champion. Make a difference. Visit heart.chop.edu for the tool kit and more information.
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The Children’s Hospital of Philadelphia
Philadelphia, PA (Vocus/PRWEB) March 16, 2011
An international group of over 300 medical experts gathers today to discuss the most current advances in prenatal diagnosis and treatment of birth defects.
About one in every 33 babies born each year in the United States has some type of major birth defect. Birth defects are also the leading cause of infant death.
The Update on Prenatal Diagnosis and Treatment of Fetal Anomalies conference occurs in Philadelphia today through March 19. Sponsored by the Center for Fetal Diagnosis and the Division of Pediatric General, Thoracic and Fetal Surgery at The Children’s Hospital of Philadelphia, the conference is one of the largest, multi-disciplinary courses devoted to advances in the diagnosis and treatment of a broad spectrum of fetal anomalies.
“Since its inception in 1995, the mission of the Center for Fetal Diagnosis and Treatment at The Children’s Hospital of Philadelphia has been to provide comprehensive, state-of-the- art care for both mother and fetus. The Center is pleased to sponsor this four-day multidisciplinary educational forum to exchange the most current research and practice innovations in this field, ” said N. Scott Adzick, M.D., Surgeon-in-Chief at The Children’s Hospital of Philadelphia and co-founder and director of Children’s Hospital’s Center for Fetal Diagnosis and Treatment.
In celebration of the Center’s 15th anniversary, the conference highlights significant evolution and innovation in the field of fetal therapy. This year’s conference will bring together experts from prenatal through postnatal management of mothers, fetuses and children with fetal anomalies and present the latest breakthroughs in care – from genetic testing and fetal intervention to support for families and long-term postnatal outcomes. Only last month, for instance, a landmark, federally sponsored clinical trial, co-led by the Center, reported substantially improved outcomes in children who underwent prenatal surgery for spina bifida.
“This conference highlights the remarkable progress in diagnosing, managing and treating a broad variety of birth defects, which are increasingly being detected in the prenatal period,” said course director, Mark P. Johnson, M.D., director of Obstetrical Services at the Center for Fetal Diagnosis and Treatment.
Obstetricians, maternal-fetal medicine specialists, surgeons, neonatologists, cardiologists, anesthesiologists, radiologists, urologists, nursing professionals, genetic counselors, geneticists, sonographers and social workers from 28 states and 12 countries will participate in the four-day conference. Over 70 individual presentations will take place including a comprehensive review of specific congenital anomalies, such as central nervous system defects, congenital diaphragmatic hernias, chest masses, gastrointestinal and genitourinary defects, congenital heart disease, and twin-twin transfusion syndrome.
The Center for Fetal Diagnosis and Treatment at The Children’s Hospital of Philadelphia is an internationally recognized leader in fetal surgery and fetal care. One of the only programs of its kind in the world, it offers a comprehensive breadth of services, including fetal therapy, to support patients from prenatal evaluation through delivery, postnatal care, and long-term follow-up. Established in 1995, the Center has welcomed more than 10,000 expectant parents and received referrals from all 50 states and more than 50 countries. Its multidisciplinary team brings decades of experience to the care and treatment of the fetus and the expectant mother. The Center has performed nearly 800 fetal surgeries, including complex open procedures for birth defects such as spina bifida; less invasive fetoscopic or ultrasound-guided surgeries for conditions such as twin-twin transfusion syndrome; and specialized coordinated delivery approaches for babies that require surgical intervention while still on maternal-placental life support (EXIT delivery). To facilitate its full spectrum of care, the Center is also home to the Garbose Family Special Delivery Unit, the world’s first birthing unit created exclusively for pregnancies complicated by birth defects. For more information, please visit: fetalsurgery.chop.edu.
About The Children’s Hospital of Philadelphia was founded in 1855 as the nation’s first pediatric hospital. Through its long-standing commitment to providing exceptional patient care, training new generations of pediatric healthcare professionals and pioneering major research initiatives, Children’s Hospital has fostered many discoveries that have benefited children worldwide. Its pediatric research program is among the largest in the country, ranking third in National Institutes of Health funding. In addition, its unique family-centered care and public service programs have brought the 516-bed hospital recognition as a leading advocate for children and adolescents. For more information visit: http://www.chop.edu.
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Children Hospital Pennsylvania CHOP Patricia Lee Perjury Role Child Slaughter Court Reform Emergency
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Happy Holidays from the social workers at Yale New Haven Hospital.
Question by Jake5282: Any lawyers out there lol?
This joke is for Jacqui’s husband lol……
A man has a heart attack and is brought to the hospital ER. The doctor tells him that he will not live unless he has a heart transplant right away. Another doctor runs into the room and says, “you’re in luck, two hearts just became available, so you will get to choose which one you want. One belongs to an attorney and the other to a social worker”.
The man quickly responds, “the attorney’s”.
The doctor says, “Wait! Don’t you want to know a little about them before you make your decision?”
The man says, “I already know enough. We all know that social workers are bleeding hearts and the attorney’s probably never used his. So I’ll take the attorney’s!”
If your family member or close friend has recently had a stroke, you’re probably still reeling. Not only do you have to come to terms with her acute illness and possible disability, you have to make plans for the future. Will she be able to return to her former living situation, or will you need to arrange for more care? Should you move her into your own home or a long-term care facility? And how do you manage the feelings and needs of your other family members, including kids?
Deciding how much care someone will need isn’t easy. One of the most frustrating aspects of stroke is that there’s no magical formula or timeline for recovery: Life after stroke means coming to terms with uncertainty. But once you have a reasonably good idea of the patient’s prognosis, you can at least begin doing some research and weighing the pros and cons of different options.
Armed with this information, you’ll be able to make an informed decision about what’s best not only for the patient, but also for you and the rest of your family.
Post-stroke care in your home
If your family member can’t return to her former living situation after a stroke, the decision you’ll face is whether to care for her in your own home or find a long-term care facility. If you think you can care for her yourself, you may want to look into some type of part-time help:
In-home help. Part-time home care costs more as the level of care increases. A home care aide is the least expensive and can help with household tasks like cleaning and laundry. A home health aide can also help with bathing and grooming; oversee medications; check pulse, temperature, and blood pressure; and help with simple exercises. A nurse provides more medical care but is considerably more costly.
Adult daycare and respite services. This option might enable you to keep working outside the home or simply give you a much-needed break from caregiving. Adult daycare centers usually offer special activities, such as exercise programs, arts and crafts, and music. Some adult daycare also offers occupational, speech, and physical therapy.
Post-stroke care in a facility
If you can’t care for your family member at home, you’ll need to choose a long-term care facility. As with home care, the expense of these options increases with the level of care provided.
Assisted-living facilities. If your family member needs minimal assistance with daily activities, this relatively inexpensive option will allow her to live fairly independently. Assisted-living facilities feature private apartments and offer help with meals, cleaning and laundry, bathing, dressing, grooming, and managing medications. On-site medical care isn’t available.
Residential care facilities. Like assisted-living facilities, residential care offers laundry and cleaning services, help with personal care, and help with medications. Although on-site medical care isn’t available, residents are more closely supervised. Meals are communal and rooms usually don’t include a kitchenette.
Nursing homes. This is probably the best choice if the patient requires skilled nursing care around the clock. Nursing aides help with all aspects of personal care, including using the toilet. Trained medical professionals are always available in case of emergency. Although a nursing home is the most expensive option, it may be your only choice if the patient is severely disabled.
Continuing-care communities. A continuing-care community is a single facility that offers all the different levels of care, from assisted living to full nursing care. This is a great way to meet a stroke patient’s changing needs while giving you both a sense of continuity.
Assess the patient’s needs
Your family member’s doctors and rehabilitation team will be able to help you determine how much care she needs, both in the short term and in the future. Request a detailed evaluation of her brain injury and prognosis, then start looking at more specific care needs. Ask a doctor or rehabilitation specialist to sit down with you and go through the following list of questions:
- Will she be able to get out of bed by herself? If not, how much help will she need?
- Will she be able to go to the bathroom by herself? Will she have any urinary incontinence? Bowel incontinence? Will she be able to clean up after herself?
- Will she be able to bathe or take a shower on her own? If not, how much help will she need?
- Will she be able to get dressed by herself? If not, how much help will she need?
- Will she be able to feed herself? If not, how much help will she need?
- Will she be able to walk on her own or with a walker or cane? Will she need to be in a wheelchair? Will she be able to get in and out of the car by herself?
- Will she be able to speak, read, or write? If not, will her ability to communicate ever improve?
- Should we expect any kinds of behavioral problems?
- Will she be able to remember things? Will she be able to think clearly?
- What long-term medical complications might we expect?
- The doctor or rehab expert doesn’t have a crystal ball, so don’t be too frustrated if he can’t give you hard-and-fast answers. But by asking specific questions, you’ll be able to get a sense of how much your family member will be able to do, with or without help.
- The next step is to figure out whether you’ll be able to help her do the things she can’t do on her own. For example, are you physically capable of getting her in and out of the car? Are you prepared to deal with angry outbursts? How will you take care of her if she can’t tell you what she needs? Can you prepare all of your family member’s meals and feed her while also taking care of your young children? Whether you’re able to care for the patient at home will depend in part on how disabled she is, how fit and healthy you are, and how much time you have to devote to her care.
Weigh the needs of other family members
Of course, you’ll also have to consider the needs of the rest of your family. If you have children, it may be impossible for you to raise them while providing adequate care for your severely disabled family member. Or perhaps having the patient in the home will put too much strain on your marriage. And if the person who had a stroke is your parent, and your other parent is in the picture, you’ll have to take into account his needs, feelings, and ability to care for his spouse. You may need to find a new living situation for both of them.
Which care options can you afford?
Unfortunately, your options may be limited by your finances. Part-time home care, adult daycare, and long-term care facilities all cost money, and not everyone’s insurance covers these services. Once you’ve decided which services you’d like the patient to have, you’ll need to determine what you can afford. Find out if she has health insurance in addition to Medicare, if she holds any long-term care insurance that will help pay for nursing home or in-home care, or if she’s put money aside or in investment accounts to help offset the cost of care. If not, and if she owns her home, consider looking into an equity loan on their house.
Get help from a social worker or care manager
If you’re feeling completely overwhelmed by all the decision-making, don’t despair. A hospital social worker may be able to help you sort through insurance and Medicare, find financial aid, and contact local care facilities. Hospital social workers tend to have a lot of demands on their time, so if you can’t find one to assist you, you may want to consider hiring a care manager. Like a social worker, a care manager can help you research local care facilities and figure out your finances. He can also help you communicate with other family members, work with the doctors and rehabilitation team, and figure out creative options for getting what your family needs. Ask a hospital social worker for a referral, and be sure to check the care manager’s references so you know he has done a good job for other families in your area.
Choose what’s best for the patient
Coming to terms with the fact that a family member needs to go to a long-term care facility can be difficult and painful. You may feel that you’re abandoning her or breaking a promise you once made to care for her. But the most important thing is that the patient gets the care she needs. People who’ve had a stroke need a safe and healthy environment with the appropriate level of support. If you can’t provide that in your home, then a long-term care facility is the best thing for your family member. Although it may be heart wrenching when she asks to go home, realize that you’re keeping the spirit of your promise by making sure she gets the best possible care.
Stay positive, but stay alert to her condition
No one can predict exactly what the future will hold. Some stroke disabilities get better over time. With speech therapy, your family member may regain some ability to communicate. Physical therapy may improve her range of motion. If this is the case, your family member may actually need less care as she regains more independence.
But you should also be prepared for the opposite scenario. A brain injury almost always has permanent effects: if the patient has trouble communicating, making decisions, or remembering things, the situation is not likely to improve dramatically. If she’s partially paralyzed, she’s susceptible to medical complications like pressure sores, blood clots in the legs, muscle spasms, and infection. Such complications can result in a rapid decline, requiring you to provide or seek more assistance and care. If she’ll require only minimal care after hospital discharge, consider it an opportunity to make plans for the future.
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Playa del Rey Toy Drive to collect items for Childrens Hospital, local animal shelters
The seventh annual Playa del Rey Toy Drive will be collecting toys for the upcoming holidays for the Childrens Hospital Los Angeles as well as accepting items for local animal shelters to help animals in their care.
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Drexel Hill Time
AES Seniors
